Improve disability data systems to improve care

MSH currently has very limited data systems to track and analyse hospital issues for people with disability. For NDIS tracking purposes the HHS has had to set up manual tracking spreadsheets for high risk patients which run parallel to our existing systems.

A lack of disability patient identifiers (like the Aboriginal and Torres Strait Islander patient identifier) restricts our ability to analyse hospital issues for people with disability such as:

  • Admissions, readmissions
  • Length of stay
  • Did not attend rates
  • Discharge against medical advice
  • Which services people with disability use
  • Deaths, safety and adverse incidents

Our consumer feedback surveys also do not ask demographic information about whether the survey participant has a disability. This hampers our ability to analyse consumer feedback from people with disability or to know whether people with disability were included in our feedback systems.

This idea seeks to:

  • Increase the use of the new NDIS identifier in HBCIS
  • Introduce an ieMR alert which identifies patients with complex disability support needs and alert staff to what the consumer's reasonable adjustment needs
  • Explore the addition of a disability demographic identifier based on NSW Health methodologies
  • Introduce a NSW demographic question into consumer feedback surveys similar to NSW Health

Why the contribution is important

Data and patient identification is a basic infrastructure need which is required to measure and improve services for people with disability.

Health service performance monitoring

People with disability have complex health needs and experience poor health outcomes. People with intellectual disability die more than 20 years younger than people without intellectual disability and are twice as likely to die avoidably. Health services currently have few performance monitoring systems in place for a highly vulnerable consumer group.

Health service planning

People with disability often have complex care and support needs while they access hospital services. We currently have no alert systems to notify staff that consumers have complex access and support needs and what these needs are (physical access, behavioural support needs, general anaesthesia, communication support, impaired decision-making etc). An alert could also be used to identify patients in need of complex discharge planning.

With a new political focus on people with disability and new Royal Commission into the violence, abuse and neglect of people with disability - it is time for hospital services to begin monitoring and analysing health service access, quality and safety issues for people with disability.

by troyhakala on May 29, 2019 at 09:52AM

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